Visit to Stanford

DEXA scan revealed Osteopenia, a progression towards Osteoporosis. But I am not too worried about it (yet). Pain in the right arm was gone by Saturday evening that day. It has been fairly quite since then with occasional pain but not lasting more than an hour or so. Visit to Stanfords was relieving. Dr. Utz stressed - once again - on the European regimen of usage of Cyclophophamide. They use 1.5 - 2.0 mg / kg of Cytoxan for 3 - 6 months and start tapering it withing the next 3 months adding Imuran to the list. It will be 1 year in April since I was started on Cytoxan. Prolonged use of Cytoxan can cause toxicity in the body that can lead to bladder, lymph nodes or bone marrow cancer. Need to get Shapiro to start tapering Cytoxan asap. We have an appt. with him today hoping to convince him...

Moving Along!!!

Who said life's fair? - So my trip to Helsinki was fun ... with Rajni and didi (Uma)... kids stayed at home with Senaka and Lalani (God bless them!). Labs have been fairly OK so far. Sugar levels were at 111 mg/dL, but that was w/o fasting. Dr. Moness ordered a cholestrol lab, that turned out to be on the high side, however the glucose was at 88mg/dL, well below the normal. I have been feeling pain all over my body lately when I sleep at night. Not quite sure what that is... Dr. Moness also ordered a dexa scan, results are not in yet. Have been feeling OK otherwise for the most part, however deep down there I feel something is not quite right. Noticed some blood traces in nasal discharge last night. This had completely subsided, but seems to have swung back. Flare? - dont really know. Still on 133mg of Cytoxan but only 9mg of Prednisone. As always taking one day at a time, and keeping my spirits high!